elizabette… unplugged

Sidebar

Search for:

socials

View elizabettewrites’s profile on Facebook
View elizabettewrites’s profile on Instagram

Follow

Receive notifications of new posts by email.

Email Address:

Coming Soon!

Murder at the Boardinghouse

biogen coronavirus current events disability history humor ionis medicine muscular dystrophy neuroscience news nusinersen patterson politics science SMA spinal muscular atrophy spinraza stanford wheelchair

Contact Elizabette

copyright

All rights reserved. No part of this website may be reproduced or transmitted, in any form, without permission. In other words, if you steal my stuff, I’m going to get pissed off, call my lawyer and run you over with my wheelchair.
© Elizabette Guéçamburu, 2023

Insta-BETTE

So excited. Stay tuned for publication updates in the coming days… ❤️

thankful for 2022. hopeful for joy, health & peace in 2023.

stay cozy this christmas. 🎄❤️

cookie day with the best baking assistant around. ❤️🎄

If some guy gives you 184 birds for Christmas, he’s not your true love. He’s Ted Bundy.

yesterday, i spoke at the @stanfordneuromuscular conference about living with #spinalmuscularatrophy. it was a cold, rainy day, but i got this faculty name tag that i will use to impress people for years to come.

today was a win for #inclusivity — thanks to #Biogen for bringing #disabled faces & perspectives into the world of wellness and health. #physicaltherapy #spinalmuscularatrophy #exercises

I bundled up for my pre-#Spinraza bloodwork this morning. My #spinalmuscularatrophy veins are tiny, so the extra layers & a tiny heat packet on my forearm keep them from shrinking any further. (It’s an added bonus that I look like the kid from Who-ville. ❄️💦)

Mic drop. Thanks for the new tee @anderetxu43 🧡

trick-or-treat 2022. 🎃👻❤️

happy halloween from my favorite wizard. 🎃👻🧡

Yesterday, I had a full battery of physical & respiratory tests. It was a looooong day, but everything seems stable from my previous assessment. 🧬📊😀 A shout-out to the great team at @stanfordneuromuscular for all their efforts. ❤️

Top Posts

Further Adventures in Physical Therapy

archives

archives

Recent Posts

Coming soon… January 20, 2023
Masks, please. October 26, 2022
Death by Bureaucracy October 8, 2022
I know it’s been awhile May 5, 2022
The Pay Gap March 1, 2022

Introducing… SPINRAZA GIRL!

Standard

Share this:

Click to share on Twitter (Opens in new window)
Click to share on Facebook (Opens in new window)

Like this:

Like Loading...

Date October 31, 2017
Tags biogen, disability, halloween, humor, ionis, muscular dystrophy, nusinersen, spinal muscular atrophy, spinraza, wheelchair
Comments 7 Comments

Post navigation

Margaritas & How To Stalk A Physical Therapist

Nutcrackers, Holiday Decorating & All The Lies We Tell

7 thoughts on “Introducing… SPINRAZA GIRL!”

mamajo23

YES

LikeLiked by 1 person
- October 31, 2017 at 7:52 pm
- Reply
Barbara Saavedra

Super Cute! Happy Halloween!

LikeLike
- October 31, 2017 at 8:13 pm
- Reply
Tammi Bradley

Happy Halloween, now go save the SMA world!

LikeLiked by 1 person
- October 31, 2017 at 10:19 pm
- Reply
fran huston

Xoxo

LikeLike
- November 1, 2017 at 1:25 am
- Reply
Annie Guéçamburu

We love it and we love you

LikeLike
- November 1, 2017 at 2:07 am
- Reply
Julie Ann Frame

You ROCK!

LikeLiked by 1 person
- November 1, 2017 at 12:15 pm
- Reply
Alexis Rose

Awesome!!

LikeLiked by 1 person
- November 2, 2017 at 4:53 pm
- Reply

Leave a Reply Cancel reply

Enter your comment here...

Fill in your details below or click an icon to log in:

Email (required) (Address never made public)

Name (required)

Website

You are commenting using your WordPress.com account. ( Log Out / Change )

You are commenting using your Twitter account. ( Log Out / Change )

You are commenting using your Facebook account. ( Log Out / Change )

Connecting to %s

Notify me of new comments via email.

Notify me of new posts via email.

Δ

A WordPress.com Website.

Follow Following
- elizabette... unplugged
- Already have a WordPress.com account? Log in now.

%d bloggers like this: