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All rights reserved. No part of this website may be reproduced or transmitted, in any form, without permission. In other words, if you steal my stuff, I’m going to get pissed off, call my lawyer and run you over with my wheelchair.
© Elizabette Guéçamburu, 2020

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Happy Galentine’s Day! 💕💌☕️🌸🧁 (Celebrate all the supportive & caring women in your life today! ❤️)

Another #Spinraza treatment in the books earlier this week. It was a tough one this time, but glad to have it behind me. ❤️💉 #spinalmuscularatrophy

I know it’s been a long year, but don’t fret— today is Superb Owl Day!!!! 🦉❤️ #SuperbOwl

Be sure you select the correct option “ITEM” or “LB” on grocery deliveries. 6 hrs later, I’m still worried that Instacart’s Emmalee thinks that I’m the kinda person that was in desperate need of just ONE banana. (Please accept my 5-star rating & let’s not speak of this again.)

Feeling grateful & thankful to have received my 1st dose of the #COVID19 vaccine this past week. ❤️ This was *only* possible because I was lucky to have a doctor & pharmacist that fought really hard for me. This is because the #disabled are still not prioritized in most places, including California. It shouldn’t be this hard for high-risk people like me to get vaccinated.

In 2021, I want to make soup a thing.

a zoomy nye with old friends. ☃️❄️🥂

just a selection of the lovely holiday cards & greetings received this season. as 2020 comes to a close, please be safe... be well... be kind. ❤️

I am a Binge-Squirrel. I horde away TV shows like nuts until I find the right moment to consume them. It is finally time for @themandalorian ... Because of this, I now have 2 new seasons to watch, while you non-squirrels have 0.

After a bit of a drought, I finally wrote a new blog post to give voice to the experiences #disabled & #highriskcovid19 folks are going through right now. Be safe & be well. ❤️

I feel like we're living a modern version of the London Blitz in 1940. If we venture too far out from our shelters, the Luftwaffe is gonna get us.

You know it’s a good day when an elf leaves you the perfect pumpkin surprise at your doorstep.

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Introducing… SPINRAZA GIRL!

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Date October 31, 2017
Tags biogen, disability, halloween, humor, ionis, muscular dystrophy, nusinersen, spinal muscular atrophy, spinraza, wheelchair
Comments 7 Comments

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Margaritas & How To Stalk A Physical Therapist

Nutcrackers, Holiday Decorating & All The Lies We Tell

7 thoughts on “Introducing… SPINRAZA GIRL!”

mamajo23

YES

LikeLiked by 1 person
- October 31, 2017 at 7:52 pm
- Reply
Barbara Saavedra

Super Cute! Happy Halloween!

LikeLike
- October 31, 2017 at 8:13 pm
- Reply
Tammi Bradley

Happy Halloween, now go save the SMA world!

LikeLiked by 1 person
- October 31, 2017 at 10:19 pm
- Reply
fran huston

Xoxo

LikeLike
- November 1, 2017 at 1:25 am
- Reply
Annie Guéçamburu

We love it and we love you

LikeLike
- November 1, 2017 at 2:07 am
- Reply
Julie Ann Frame

You ROCK!

LikeLiked by 1 person
- November 1, 2017 at 12:15 pm
- Reply
Alexis Rose

Awesome!!

LikeLiked by 1 person
- November 2, 2017 at 4:53 pm
- Reply

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