elizabette… unplugged

Sidebar

Search for:

socials

View elizabettewrites’s profile on Facebook
View elizabettewrites’s profile on Instagram

Follow

Receive notifications of new posts by email.

Email Address:

Coming Soon!

Murder at the Boardinghouse

biogen coronavirus current events disability history humor ionis medicine muscular dystrophy neuroscience news nusinersen patterson politics science SMA spinal muscular atrophy spinraza stanford wheelchair

Contact Elizabette

copyright

All rights reserved. No part of this website may be reproduced or transmitted, in any form, without permission. In other words, if you steal my stuff, I’m going to get pissed off, call my lawyer and run you over with my wheelchair.
© Elizabette Guéçamburu, 2023

Insta-BETTE

love my tantas. ❤️

Excited for the 50th Anniversary NABO #Basque Picnic Weekend hosted by the @losbanosbasqueclub — Will be sharing news of my upcoming novel, Murder at the Boardinghouse. 😀

just realized i will never read ALL the books i want to read during my lifetime because my to-read list is ALWAYS growing so i can read and READ every day until i DIE and still never catch up so i guess this is what a midlife crisis feels like.

Thankful to share this special day with Brooke & Jake. ✝️🤍

Charles is already king. There’s ZERO need to crown him something he already is. Unless he just wants a big, fancy party to celebrate that he came out of the right woman’s uterus?

Charley sends wishes for a great Easter weekend. 🐰🌸🐣💜

Yesterday was full of sunshine, chilly air & assessments of all kinds. Fueled by cinnamon coffee & jitters, I was measured, poked & stretched. The results are stable from last time— a WIN when you have a progressive #disability like #spinalmuscularatrophy

📚+ 🐈 + ☕️ = ❤️

found a sunny morning during these rainy days to get my 22nd dose of #spinraza. feeling good… and grateful! ❤️

☀️⏰ Dear Daylight Saving Time — I don’t understand the people that like you. Or like flip flops. Or like sitting in the sun, on purpose, and not just fleetingly like when going from one place to another. I like eating dinner when it’s dark. And then going to sleep during an hour that has only one digit in it. Like 8. I like long-sleeved shirts, scarves and cozy drinks. I don’t want to sweat. I don’t see the point in more sunlight at nighttime. If you like sunlight, get up when the sun comes up. As people did during the era when we weren’t ruled by the tiny gadgets in our pockets that tell us where to go and how many steps we’ve taken to get there. The summer already has more sunlight than the rest of the year, so don’t try to steal the precious darkness from those of us that want to eat dinner at 5pm like a reasonable hermit. Your inventor, Ben Franklin, has been dead for 233 years, so he won’t give a damn if we give you the shaft. You’ve outlived your usefulness. Just like cryptocurrency, skinny jeans and Elon Musk.

@theheumannperspective was a trailblazer for #disabilityrights & i am grateful for all she has done for our community.

So excited. Stay tuned for publication updates in the coming days… ❤️

Top Posts

Murder at the Boardinghouse

archives

archives

Recent Posts

Coming soon… January 20, 2023
Masks, please. October 26, 2022
Death by Bureaucracy October 8, 2022
I know it’s been awhile May 5, 2022
The Pay Gap March 1, 2022

Introducing… SPINRAZA GIRL!

Standard

Share this:

Click to share on Twitter (Opens in new window)
Click to share on Facebook (Opens in new window)

Like this:

Like Loading...

Date October 31, 2017
Tags biogen, disability, halloween, humor, ionis, muscular dystrophy, nusinersen, spinal muscular atrophy, spinraza, wheelchair
Comments 7 Comments

Post navigation

Margaritas & How To Stalk A Physical Therapist

Nutcrackers, Holiday Decorating & All The Lies We Tell

7 thoughts on “Introducing… SPINRAZA GIRL!”

mamajo23

YES

LikeLiked by 1 person
- October 31, 2017 at 7:52 pm
- Reply
Barbara Saavedra

Super Cute! Happy Halloween!

LikeLike
- October 31, 2017 at 8:13 pm
- Reply
Tammi Bradley

Happy Halloween, now go save the SMA world!

LikeLiked by 1 person
- October 31, 2017 at 10:19 pm
- Reply
fran huston

Xoxo

LikeLike
- November 1, 2017 at 1:25 am
- Reply
Annie Guéçamburu

We love it and we love you

LikeLike
- November 1, 2017 at 2:07 am
- Reply
Julie Ann Frame

You ROCK!

LikeLiked by 1 person
- November 1, 2017 at 12:15 pm
- Reply
Alexis Rose

Awesome!!

LikeLiked by 1 person
- November 2, 2017 at 4:53 pm
- Reply

Leave a Reply Cancel reply

Enter your comment here...

Fill in your details below or click an icon to log in:

Email (required) (Address never made public)

Name (required)

Website

You are commenting using your WordPress.com account. ( Log Out / Change )

You are commenting using your Facebook account. ( Log Out / Change )

Connecting to %s

Notify me of new comments via email.

Notify me of new posts via email.

Δ

A WordPress.com Website.

Follow Following
- elizabette... unplugged
- Already have a WordPress.com account? Log in now.

%d bloggers like this: