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All rights reserved. No part of this website may be reproduced or transmitted, in any form, without permission. In other words, if you steal my stuff, I’m going to get pissed off, call my lawyer and run you over with my wheelchair.
© Elizabette Guéçamburu, 2021

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@richardbranson — we #disabled folks just want to fly safely on your airplanes in our #wheelchairs … if you can make a ship to travel to fucking SPACE, can’t you make your regular planes more #accessible to countless people like me? @virginatlantic @virgingalactic

If you want to #FreeBritney it’s time to talk about #Ableism. After all, conservatorships are simply *one* of the MANY tools of oppression & control utilized against #disabled people every single day.

Big thanks to @nmdunited for hosting a fun karaoke night! 🍸🍹🎤🎼 (Please give @nmdunited a follow to learn more about this fabulous peer-led organization that supports adults with neuromuscular disabilities!)

Thanks for the 14 years, Lucky. What a dog. 💔

check out my newest post: “cicada hordes & lots of spicy nuggets” (link in bio) ❤️ #disability #spinalmuscularatrophy #spinraza

✅ Get #Spinraza Intrathecal Injection

✅ Clean Out Closet

grateful for zoom & books. ❤️📚

A birthday girl stopped by today to say hello. 🎈🦄 #goddaughter

Aside from medical appts, today was the 1st time in a year that I went inside a place that wasn’t my own home. While I’m relieved, the trauma is still real. Please #GetVaccinated so your #HighRiskCOVID19 friends & family are safe venturing out into the world with you again.

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Cicada Hordes & Lots of Spicy Nuggets
One Year In.
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“Nobody wants to see that."
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Introducing… SPINRAZA GIRL!

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Date October 31, 2017
Tags biogen, disability, halloween, humor, ionis, muscular dystrophy, nusinersen, spinal muscular atrophy, spinraza, wheelchair
Comments 7 Comments

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7 thoughts on “Introducing… SPINRAZA GIRL!”

mamajo23

YES

LikeLiked by 1 person
- October 31, 2017 at 7:52 pm
- Reply
Barbara Saavedra

Super Cute! Happy Halloween!

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- October 31, 2017 at 8:13 pm
- Reply
Tammi Bradley

Happy Halloween, now go save the SMA world!

LikeLiked by 1 person
- October 31, 2017 at 10:19 pm
- Reply
fran huston

Xoxo

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- November 1, 2017 at 1:25 am
- Reply
Annie Guéçamburu

We love it and we love you

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- November 1, 2017 at 2:07 am
- Reply
Julie Ann Frame

You ROCK!

LikeLiked by 1 person
- November 1, 2017 at 12:15 pm
- Reply
Alexis Rose

Awesome!!

LikeLiked by 1 person
- November 2, 2017 at 4:53 pm
- Reply

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