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All rights reserved. No part of this website may be reproduced or transmitted, in any form, without permission. In other words, if you steal my stuff, I’m going to get pissed off, call my lawyer and run you over with my wheelchair.
© Elizabette Guéçamburu, 2022

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Pumpkin Candle ✅

Happy September! 🍂🍁🍎

Meet Tomas… 🐾 Aita’s new sheepdog. We think he’s adorable, but Charley is not convinced. From the window, Charley glares at Tomas in the yard, finding his puppy energy very off-putting. 😁

A big thank you to @bombas for these compression socks for my #disabled tootsies! Not only are their socks soft, comfortable & supportive, @bombas cares about the community— they donate socks to those in-need every day! ❤️

I didn’t win the #MegaMillionsJackpot so I just had to cancel my order for Charley’s solid gold litterbox.

today i had my 20th #spinraza intrathecal infusion at @stanfordneuromuscular … i’m grateful to have access to this ground-breaking treatment… and i’m so thankful to EVERYONE that has made it possible these past five years. it takes a team of support and i’m fortunate to have the best folks by my side. ❤️ #spinalmuscularatrophy #disability #disabilitypridemonth

I was this-many-days old when I learned that a “flex” isn’t just a stretch.

50 years ago, today… ❤️

My cat escaped my house for 28.5 minutes & I had a meltdown. It’s a good thing I don’t have any children that I could lose at Costco.

charley is my ghostwriter. 🧡

Sunday with Charley. 🧡🐾

So you say you oppose abortion because you want to “save disabled babies.” Where have you been in the fight for services/laws to support #disabled babies after they are born… and into adulthood??

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Introducing… SPINRAZA GIRL!

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Date October 31, 2017
Tags biogen, disability, halloween, humor, ionis, muscular dystrophy, nusinersen, spinal muscular atrophy, spinraza, wheelchair
Comments 7 Comments

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7 thoughts on “Introducing… SPINRAZA GIRL!”

mamajo23

YES

LikeLiked by 1 person
- October 31, 2017 at 7:52 pm
- Reply
Barbara Saavedra

Super Cute! Happy Halloween!

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- October 31, 2017 at 8:13 pm
- Reply
Tammi Bradley

Happy Halloween, now go save the SMA world!

LikeLiked by 1 person
- October 31, 2017 at 10:19 pm
- Reply
fran huston

Xoxo

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- November 1, 2017 at 1:25 am
- Reply
Annie Guéçamburu

We love it and we love you

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- November 1, 2017 at 2:07 am
- Reply
Julie Ann Frame

You ROCK!

LikeLiked by 1 person
- November 1, 2017 at 12:15 pm
- Reply
Alexis Rose

Awesome!!

LikeLiked by 1 person
- November 2, 2017 at 4:53 pm
- Reply

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