elizabette… unplugged

Sidebar

Search for:

connect

View elizabettewrites’s profile on Facebook
View elizabettewrite’s profile on Twitter
View elizabette81’s profile on Instagram

Follow

Receive notifications of new posts by email.

Email Address:

Tags

biogen coronavirus current events disability donald trump hillary history holidays humor ionis medicine muscular dystrophy neuroscience news nusinersen olympics patterson politics science SMA spinal muscular atrophy spinraza stanford trump wheelchair

Contact Elizabette

copyright

All rights reserved. No part of this website may be reproduced or transmitted, in any form, without permission. In other words, if you steal my stuff, I’m going to get pissed off, call my lawyer and run you over with my wheelchair.
© Elizabette Guéçamburu, 2021

Insta-BETTE

✅ Clean Out Closet

grateful for zoom & books. ❤️📚

A birthday girl stopped by today to say hello. 🎈🦄 #goddaughter

Aside from medical appts, today was the 1st time in a year that I went inside a place that wasn’t my own home. While I’m relieved, the trauma is still real. Please #GetVaccinated so your #HighRiskCOVID19 friends & family are safe venturing out into the world with you again.

“One Year In” — new blog post (link in bio) 😷#highriskcovid19 #disability #spinalmuscularatrophy #vaccine

As a reward to myself for enduring a looong day of neuromuscular assessments yesterday, today I got a carne asada burrito from my favorite taco truck. I just ate 2/3 of it & now I have epic cilantro burps.

A long, long day of physical & respiratory evaluations with the neuromuscular team... good, important stuff, but glad it’s done! 🥴 Whew! #spinalmuscularatrophy

Happy Galentine’s Day! 💕💌☕️🌸🧁 (Celebrate all the supportive & caring women in your life today! ❤️)

Another #Spinraza treatment in the books earlier this week. It was a tough one this time, but glad to have it behind me. ❤️💉 #spinalmuscularatrophy

I know it’s been a long year, but don’t fret— today is Superb Owl Day!!!! 🦉❤️ #SuperbOwl

Be sure you select the correct option “ITEM” or “LB” on grocery deliveries. 6 hrs later, I’m still worried that Instacart’s Emmalee thinks that I’m the kinda person that was in desperate need of just ONE banana. (Please accept my 5-star rating & let’s not speak of this again.)

Feeling grateful & thankful to have received my 1st dose of the #COVID19 vaccine this past week. ❤️ This was *only* possible because I was lucky to have a doctor & pharmacist that fought really hard for me. This is because the #disabled are still not prioritized in most places, including California. It shouldn’t be this hard for high-risk people like me to get vaccinated.

Top Posts

About

Latest Tweets

archives

archives

happiness = a new coffee mug #grammarpolice

Standard

Share this:

Twitter
Facebook

Like this:

Like Loading...

Date September 17, 2016
Comments Leave a comment

Post navigation

Morning Routines

Leave a Reply Cancel reply

Enter your comment here...

Fill in your details below or click an icon to log in:

Email (required) (Address never made public)

Name (required)

Website

You are commenting using your WordPress.com account. ( Log Out / Change )

You are commenting using your Google account. ( Log Out / Change )

You are commenting using your Twitter account. ( Log Out / Change )

You are commenting using your Facebook account. ( Log Out / Change )

Connecting to %s

Notify me of new comments via email.

Notify me of new posts via email.

Website Powered by WordPress.com.

Email (Required)

Name (Required)

Website

Loading Comments...

Comment

×

%d bloggers like this: