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All rights reserved. No part of this website may be reproduced or transmitted, in any form, without permission. In other words, if you steal my stuff, I’m going to get pissed off, call my lawyer and run you over with my wheelchair.
© Elizabette Guéçamburu, 2020

Insta-BETTE

As a reward to myself for enduring a looong day of neuromuscular assessments yesterday, today I got a carne asada burrito from my favorite taco truck. I just ate 2/3 of it & now I have epic cilantro burps.

A long, long day of physical & respiratory evaluations with the neuromuscular team... good, important stuff, but glad it’s done! 🥴 Whew! #spinalmuscularatrophy

Happy Galentine’s Day! 💕💌☕️🌸🧁 (Celebrate all the supportive & caring women in your life today! ❤️)

Another #Spinraza treatment in the books earlier this week. It was a tough one this time, but glad to have it behind me. ❤️💉 #spinalmuscularatrophy

I know it’s been a long year, but don’t fret— today is Superb Owl Day!!!! 🦉❤️ #SuperbOwl

Be sure you select the correct option “ITEM” or “LB” on grocery deliveries. 6 hrs later, I’m still worried that Instacart’s Emmalee thinks that I’m the kinda person that was in desperate need of just ONE banana. (Please accept my 5-star rating & let’s not speak of this again.)

Feeling grateful & thankful to have received my 1st dose of the #COVID19 vaccine this past week. ❤️ This was *only* possible because I was lucky to have a doctor & pharmacist that fought really hard for me. This is because the #disabled are still not prioritized in most places, including California. It shouldn’t be this hard for high-risk people like me to get vaccinated.

In 2021, I want to make soup a thing.

a zoomy nye with old friends. ☃️❄️🥂

just a selection of the lovely holiday cards & greetings received this season. as 2020 comes to a close, please be safe... be well... be kind. ❤️

I am a Binge-Squirrel. I horde away TV shows like nuts until I find the right moment to consume them. It is finally time for @themandalorian ... Because of this, I now have 2 new seasons to watch, while you non-squirrels have 0.

After a bit of a drought, I finally wrote a new blog post to give voice to the experiences #disabled & #highriskcovid19 folks are going through right now. Be safe & be well. ❤️

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Date September 17, 2016
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